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Global Genes 6th Annual RARE Tribute to Champions of Hope


Global Genes 6th Annual RARE Tribute to Champions of Hope returns September 15-16, culminating to Saturday nights award show with live entertainment and amazing presentations at the Grove of Anaheim.

The annual blue carpet events honor and celebrate rare disease advocates, scientists, patients, and supporters and the important work that they are doing to advance efforts for rare disease globally.

This year’s events will present another star-studded weekend of multiple celebrity guest appearances in support of rare disease including Parks and Rec star Jim O’Heir, star of MTV’s Awkward Jillian Rose ReedScout Compton from Nashville and Halloween 2, and Karan Brar from Disney Channel’s Jessieand Bunk’d​.

Global Genes ambassador and rare disease advocate, Madison McLaughlin, actress from CW’s Arrow and Supernatural, will host the Friday night Champion of Hope award show. Madison strives to create awareness, raise funds, and form a community for those affected by rare disease like her three sisters diagnosed with HBSL. Co-host of 104.3 MYfm’s Valentine in the Morning, Jillian Escoto, will host the Saturday night Tribute award show. Jillian is active in supporting The National Multiple Sclerosis Society after being diagnosed with MS in 2008.

The Tribute award show will kick-off with a performance by 8-year old singer Gavin Stevens, who touched hearts across America with his performance on NBC’s Little Big Shots. Season 12 contestant of NBC's The VoiceStephanie Rice, will perform; and viral sensation, patient advocate, and award honoree, Sparsh Shah, will join the line-up of entertainment with his inspirational musical performance and motivational message, that will impact everyone in attendance. To purchase tickets to the Tribute visit

The 6th Annual RARE Patient Advocacy Summit will take place prior to the Tribute to Champions of Hope September 14 – 15 and is an educational conference offering a space for members of the rare disease community to learn, share best practices, create important connections, and help catalyze powerful collaborations, all in an effort to support forward movement in rare disease.

To register to attend the Summit please register at

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